In 1960, 10,241 babies were born that weighed less than 1,000 grams (2pounds, 3 ounces) in the US, but only 67 survived.  In 1997 there were roughly 15,000 babies born who met that same criteria and well over 10,000 survived.

Unfortunately, all too often the parent of those premature children is heard saying " I love my child, but I hate my life".  Why?  Many extremely premature infants have substantial disabilities, and even very premature infants who escaped
serious illness have developmental delays and show signs of learning disabilites when they reach school age.

The harsh reality is that one parent may be forced to quit their job to care for their child, there is a high rate of
divorce among parents of premature infants and lots of
suicides.  It can be very difficult to handle the cost to both the family and work through the hurt, pain and confusion that comes with being the parent of a special needs child. 

So what can you do?  As parents we are trained to think of ourselves as strong and independent and able to handle most situations, but when you suddenly are faced with a child that has many challenges we have to admit that we need help.
This website was written to help you find that help.  There are programs listed here that will help you get necessary medical treatment for your child, help you with your medical
expenses, assist you with daily living needs and most
importantly help you and your family cope with the situation you are facing. 

Often the most difficult task facing the parent of a premature or special needs child is finding someone who understands - even friends and family are uncomfortable because they don't know what to say or how to help.  This is why is it so important to reach out to other parents - to have someone to turn to who has a child with similar needs and can answer your questions. 

Parents have a lot to offer to one another because they also know the joy and grief, accomplishments and discouragements, laughter and tears that come with a special needs child.  They also have valuable knowledge gained from experiences that can help other parents find information and services.

We encourage you to take advantage of the Family Assistance Programs listed here.  If you are uncomfortable talking to someone in person there are also toll-free numbers listed that you can call and speak to someone confidentially as well.  No matter what the source is, please get assistance for yourself, your children and your family.  We also encourage you to reach out to those who offer to help you - your friends, family, church, support groups, and above all God.   

Best Wishes to You and Your Family!