Genetic Privacy

It is important to control the collection, analysis, and storage of DNA samples, as well as the genetic information obtained from the samples.  DNA can easily be obtained and analyzed without the knowledge of the individual from which it came.  To protect genetic privacy, unauthorized collection and analysis of DNA from individually identifiable samples should be prohibited, as stated in the Genetic Privacy Act.   However, an exception is that DNA can be collected and analyzed for identification for law enforcement purposes.

The availability of genetic information poses several ethical issues.  Information can be exploited by insurance companies, adoption agencies, military, law enforcement, and employers.  There can be a psychological impact of releasing genetic information, including stigmatization by society for genetic differences or the likelihood of developing physical or mental illness.

Because DNA is stable, it can be analyzed as well as stored and used to obtain even more information as greater technological advances occur and the genetic code is deciphered.  Genetic information can also reveal the health of family members, parentage, reproductive options, and future health risks.  In a way, the information in an individual's genome encodes a personal diary for a person's likely future, including both physical and mental health.

The existence of a genetic affliction that is linked to a disease could have important implications for family members.  It is a difficult decision whether the confidentiality of a test result should be breached to warn family members to seek medical attention.