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| Shawn in Seattle (special guest webmaster: sharon stern!) | Contact Info for Shawn: | ||||||||||||||||||
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Hi. I'm Shawn and this is my Web Page. My friends and family can come here and view my progress. 05/06/99: Getting New Marrow Today! Kick Butt Shawn! 05/07/99: Received the Marrow yesterday. G-d bless the donor! 05/10/99: Had a nice weekend. Having a nice time with Nonnie and Uncle Marvin. Dr. Bruce and family are great! (pseudo relatives of the Shari and Mike Stark). Blood counts will continue to go down, before new marrow kicks in. Allergic to some of the antibiotics, getting them in slow drip now. 05/11/99: Mouth starting to hurt. Its called mucuscitous. (side effect of radiation) 05/12/99: Shawn continues to walk a mile a day. May need transfusion soon, this is normal. 05/18/99: Having great time with Matt and Mom. Painkillers are working. Other patients are jealous of Shawn's wardrobe!..and many lipstick colors. 05/21/99: Doctors say that Shawn is doing great. 05/26/99: Shawn gets released from Hospital today!! 05/28/99: Shawn is at the apartment, and is doing great. Daily visits to the clinic for blood checks will continue. Be sure to check counts page 06/01/99: Shari Stark's Mom-in-law came for a nice visit. Cousin Robbie arrived and cooked meatballs. 6/08/99: Shawn went out to dinner the other day, and is back shopping the malls! May have some GVHD showing up, but not sure. Will know more soon. Robbie goes home today. 6/16/99: Shawn had a rough weekend but is back on track now. Good news arrived yesterday---Shawn's marrow is now 99.9% donor marrow. Can't get any better. Mom & Matthew arrive on Sunday night. 6/18/99-Shawn's chest xray was negative and she is feeling better. She can't wait to see Matthew on Sunday. 7/1/99 Mom and Matthew returned home on June 27 after a wonderful and rainy visit with Shawn. Shawn is doing fine. Her blood counts are going up. She is still very weak and fighting host vs graft disease of the gut. Now on predisone to help fight it. She is off all interveinous medication taking tons of pills by mouth. She is drinking 2 liters of liquids daily and eating Stuies cooking. Cousin Randi arrives on Tuesday, July 6 until July 12. Mom and Matthew return on July 10 for a week. Doing great Shawn. Keep up the good work. 7/6/99-Shawn & Stu had a good 4th of July weekend. Shawn has a bacterial infection and is taking medicine but she did not let it get her down. They went to a park and saw some fire works from the roof of their apartment building. Waiting for results of blood draw from 7/5. Cousin Randi arrives tuesday 7/6 for a weeks visit. 7/8/99-Shawn still being troubled by graft v host in the stomach. Will have to stay on predisone a while longer. Blood pressure up due to predisone so now on blood pressure medicine. Blood numbers are excellent. All numbers are up. Cousin Randi arrived on Tuesday night for a weeks visit. Mom & Matt arrive 7/10 for a weeks visit. Keep up the good work Shawn!!!07/19/99: Mom and Matt had a great time. Shawn is doing great and is expected home August 6th. PARTY! 7/21/99-Shawn undergoing all departure tests this week. Today is the all important bone marrow. Results will not be in until next week. Nonnie & Uncle Marvin arrived last night for a week. If all test results good Shawn & Stuie come home on August 6. Date for welcome home party to be announced. Don't forget the big canoe race on August 14, 1999. Hopefully Shawn will be the quest of honor!!!!! 7/27/99-Shawn & Stu enjoying the week with Nonnie & Uncle Marvin. Still no results from the bone marrow test but we know they will be good. Shawn & Stu had dinner with Nancy & Mark from Woodbury last week. They came back to Seattle for more tests and she is doing fine. Nonnie & Uncle Marvin helping Shawn pack. They go home tommorrow morning and brother Steve arrives on Saturday night. Shawn has a few more tests this week and some departure classes. Plane lands at Kennedy airport at 4:30 on Friday August 6. Can't wait. 7/29/99-Still no results from tests but Shawn still on schedule to come home on August 6. Had first departure class yesterday. Learned what to do when she gets home. Planning to be the surprize quest at the Canoe race. Join us on Saturday August 14 from 8-12 noon at John J. Burns park boat ramp on Merrick Road, Massapequa. 8/3-The best possible news!!!!Shawn has 100% donor marrow and no signs of the Philadelphia chromosone. All systems are go for their arrival at Kennedy airport on Friday, August 6 at 4:30pm. Mark your calanders for a tentative welcome home party on August 28. More information and a firm date to follow as soon as they arrive home. 8/5/99--One more day!!! Shawn had a transfusion of red blood cells yesterday. She is feeling stronger and all ready for the trip home. Tonight is a special Yankee-Mariner game that Shawn, Stu & Steve are going to. From there Steve goes to the airport for his flight home. Shawn & Stu leave on the 8:20 Delta flight tommorrow (Friday, 8/6) from Seattle and arrive at Kennedy at 4:30PM. All welcome to greet them at the airport. Shawn has her first NY doctor appointment on Monday. Party still scheduled for August 28. Will let everyone know more details as they become available. Have a good weekend. More next weeks. Have a safe flight Shawn & Stu & Steve. 8/9/99-Shawn & Stu & Steve all had safe flights from Seattle to NY. Everyone still exhausted. Shawn has first appointment with the NY doctor today. Has an infection and will probably need more antibiotics. Shawn fell on Satuday and scraped her knees. Good point platelets are up enough so there was not a lot of bleeding. Still scheduling welcome home party for 8/28. 8/17/99-Shawn is doing fine. Blood counts are good and she is getting stronger everyday. The canoe race on Saturday August 14 was a big success. Thanks to all who participated and to all who came. Welcome home party is set for August 28. All are welcome. I am going to discontinue updates on this web page. Shawn can be reached by email at [email protected]. Thanks to all who made her stay in Seattle better by the letters, cards & emails sent. We pray for a speedy & complete recovery for her. 1/25/2000---Shawn is coming along. She is getting stronger every day. She has started back at work for a few hours twice a week. Shawn is off of most medicine and really looks great with her new short spiked-up slicked back hair do. Shawn & Stuie go back to Seattle on April 29 for a weeks worth of tests. Will update on their return. Please remember that one wonderful woman made this all possible for Shawn. If you have not already done so, Please register as a bone marrow donor. |
please address cards to Shawn Pavese 1201 Boylston Ave Apt 303, Charbonneau apts Seattle Washington 98101 Please pray for Shawn's new friend Barbra who got her marrow may 10 and for Nancy Berger who had her transplant in January. A special thanks to the Wantagh Fire Department and to all of the people who came to the Spaghetti Dinner Fundraiser for Shawn Next big fund raiser is the Massapequa Fire Department canoe race on August 14, 1999. More on that later. The cost of entry to the canoe race for a two man team is $100.00. Anyone interested in entering or sponsoring a canoe please contact [email protected]. | ||||||||||||||||||
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