I was due
in mid-December, 1959. My mother went into labor in
mid-September, two and a half months prematurely.
Her regular obstetrician was away on vacation. His associate told my father
to take my mother to the Catholic Hospital in Trenton, NJ.
When she
arrived, the doctors determined that I was transverse (sideways) in her
womb. My mother was knocked out so she would no longer be able to push.
If she had gone into labor, one of my arms would have come out first.
The doctor went in (no C-section) turned
me and pulled me out. I tipped the scale at
a whopping two pounds, eight
ounces and was fourteen inches long. I was immediately
placed in an incubator. My mother went home three days later without
her new daughter in her arms.
My parents have told me that I received excellent care from Sister Rose, one of the nursing nuns. Sister Rose took a special interest in me. She put the Patron Saint of Premature Babies on my incubator. That was not all she did to help me...
All babies lose weight
after they are born. I was no exception to the
rule. However, when you start life as little
as I was, losing weight was not a good thing for me to do. I dropped to
one pound, thirteen ounces before I started to gain again.
Late one night in October
of that same year, the doctors called my
parents. The medical staff wanted to inform
my parents that, in the staff's opinion, their daughter may not make it
through the night. After a sleepless night for my parents, they went
to the hospital to discover that I, indeed, had made it... and, 41 years
later, I am still here!
When I became stronger,
I was taken out of the incubator and placed in a "warm bed." Working
in Trenton at the time, my father always visited me on his way home.
My mother, who was taking care of my four year old brother, came to see
me whenever
she could. One evening, Sister Rose came out
of the nursery to speak with my father. She said, 'Mr. Walton, I hope you
won't be upset with me; I took Elizabeth (my given name) to the Chapel
and prayed with her." My father told her he was not upset at all.
In fact, he has told me on numerous occasions that he believes, part of
the reason I am alive today is due to
Sister Rose. I cannot deny him that belief at all.
In mid-November, having
reached the goal weight of five pounds, I was allowed
to go home.
As I grew, my parents
noticed I did not achieve the physical milestones
my brother did at the same age. When I was eighteen
months old, my pediatrician recommended my parents take me to Children's
Hospital for an extensive evaluation. At the end of four days of
tests, including a spinal tap (which I am grateful not to remember) the
doctors confirmed
my pediatrician's diagnosis: Cerebral Palsy; Rigid
Quadriplegia (now
referred to as Spastic/Quadraplegia) Their prognosis:
"Take her home; give her lots of tender loving care; don't expect too much,
though; she may not amount to much." My parents took me home and
thought otherwise.
Very soon after the
prognosis, my parents put me in physical,
occupational and speech therapy. By the age
of four, I was walking with hip length braces and underarm crutches. I
began "school" at age six. The class was made up of other children
with disabilities. There I learned the three R's, art, music, touch-typing
and many other things. When I was
nine, I had hamstring and abductor operations on my
legs in the same
summer. By age twelve, I was mainstreamed into
the regular fifth grade. I walked up to the Superintendent of Schools
in 1979 to receive my regular high school diploma. I did the same
in 1984 to receive my BS in Special Education from the Chairperson of the
Department. In 1987 I walked up to receive my Masters in Education degree.
I have lived on my own
now for a little over eleven years. I drive my
own mini van. I work as a Professional Math
Tutor at a local community college. I need a Personal Care Attendant
to help with laundry, cooking, light housekeeping and minimal personal
care. I have an active social life with many friends, including friends
in the Cerebral Palsy Network's Chat Room. I am active in my church
and sing in the Adult Choir. I love to
read, write, sing, talk and listen to music.
I am also proud to be "owned"
by a handsome four month old black and white (face
like a panda's) kitten named Ling-Ling.
There have been time
when CP has gotten me "down." I have been able to keep my depressions on
an even keel... medication and counseling help tremendously. Keeping active
and mentally stimulated help raise my mood. I do not let "cp" get
me down anymore! I have worked hard to achieve the level of independence
I have today. I plan to keep moving
forward, facing challenges and new adventures for
a long, long
time.
Betsy's Story written and submitted
by Elizabeth Walton
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