My name is Kelly I am 15 years old, I like reading, shopping, talking on the phone, chatting, meeting new people, writing, playing the clarinet, listening to music of all types, and spending time with my friends. I have cerebral palsy and this is my story............
At about 7:30 A.M. on Sunday, August
22, 1982, 2 months before she was due to deliver me, my mom woke
up due to pain in her abdomen, and found there to be a large amount of
blood on her bed. The placenta had broken open. So, she woke my father
up, and they went to the hospital. I was born at 2:00 p.m. that day. I
was 4 lbs. 11 oz.
I was not breathing well, so I
was placed on a ventilator to help me. I had tons of wires hooked up to
me! My mom was scared to hold me, I looked so fragile.
The local hospital could not do
any more for me, so I was transferred to Mott's Children's Hospital in
Ann Arbor, Michigan. I was closely watched there, to be sure there
were no further complications. They could see that my body was not working
properly, so I received physical therapy while in the hospital. My mom
came to see me there everyday after work, and sometimes brought my big
sister, Kim, who was then 13. After 5 weeks, I was allowed to go home.
As a young infant, I began an early
intervention program in the home. It was basically where a physical and
occupational therapist comes to your home. I was involved with a home based
program until I was 2.... along with a therapeutic swim program. The pool
that, that was held in was about 95 degrees, so it helped kids with spastic
muscles move independently. When I was 3, in the fall of 1985, I began
attending a preschool program for special needs children 4x/week for 3
hrs./day. I met a lot of new friends there. While I was there, I
received OT and PT, as well as participation in a sensory motor group.
When I was about 5, I visited a
general education kindergarten class, to see if I was ready to be included
in a class the next fall. Ultimately, they decided that I was, with assistance
from the special education staff that served my home school district. The
next fall, I started school. I was not too nervous, if I recall correctly.
I was used to going to school. The only mistake I made, was that I thought
everyone was like me; I thought they all could not do simple things, like
jump rope, or skip, etc. Boy, was I mistaken. The kids did not really notice
a difference until about grade 3. Well, in a sense, I guess they
did, because I was constantly taken out of the classroom, either for sessions
with a teacher consultant, or for therapy. But, they never asked me about
it.
Then, I moved on to first grade.
I started seeing the resource room teacher that year. I liked her a lot.
We worked on math, reading, spelling, writing, and she also taught me to
tie my shoes! :) I was so proud when I had learned to tie them! First grade
was pretty cool for me!
Then I moved on to second grade.
I was still seeing the resource room teacher, and still liked her a lot.
I had a very understanding teacher in second grade. She would help me even
if she didn't feel like it. I will never forget her.
All the rest of elementary school
is kind of a blur. I got made fun of a lot... and I could never figure
out why. At this stage in my life, I never even knew I had a disability.
I mean, my parents never really discussed it with me, and therapy and such
was all a part of life which i didn't know the other people did not have
to go through. Soon, I began asking my mother questions like "Why am I
different"? Then, she told me I had Cerebral Palsy. That was not much help
to me, because I still had no idea what Cerebral Palsy
was. So, I just left it at that.
About a year after that, Jr. high
started. 6th grade was kind of a rough year for me. Things people were
saying were really hurting more now, because I was beginning to reach the
age where all that matters is peer acceptance, which i clearly was not
getting from my peers. 7th grade was a great year for me, it seemed the
teasing had stopped somewhat. I was elated. Then, in 8th grade, I became
severely depressed, and begun feeling sorry for myself because of my disability.
I guess the reason is because again, I was not getting peer acceptance,
and the teasing was very bad.... so I felt like I was nothing more than
my disability. Then, the summer before I
began high school, I got into counseling, which
helped some. Though, I AM still very depressed. My self esteem is also
very low right now, which I think is due to the combination of my age,
and my disability. Slowly, and surely, I am beginning to see improvement.
What I am scared about as far as my
disability is That, as I grow older, I will need walking
aides, because of bone and muscle deteroioration.
Someday I want to become an occupational
therapist, so that I can work with kids with disabilities similar to my
own. Well, that's it for now but my life is far from over!
Kelly's Story written and submitted
by Kelly
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