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- Achromatopsia Network
- The Acoustic Neuroma Association
- Adenosine Deaminase Deficiency: Purine Research Society
- Adenylosuccinate Lyase Deficiency: Purine Research Society
- National Adrenal Diseases Foundation
- Albinism - NOAH Homepage
- Alpers syndrome: at UMDF
- Alpha1-Antitrypsin Deficiency National Association
- Alport Forum
- Alzheimer's Disease
- Amputee'S
- United Amputee Services Association, Inc.
- Amputee Coalition of America
- Amyotrophic Lateral Sclerosis: 'Lou Gehrig's Disease'
- Anencephaly Support Foundation
- Angelman Syndrome Support Group - U.K.
- Ankylosing Spondylitis
- International Children's Anopthalmia Network (ICAN)
- Apert Syndrome at Teeter's Page
- Contains links to many family pages and has a Listserv available for families.
- National Aphasia Association
- Aplastic Anemia Foundation of America, Inc.
- World Arnold Chiari Malformation Association
- Arthritis Foundation
- Arthrogryposis Multiplex Congenita: Avenue's Support Group
- Asperger's syndrome Support Network Australia
- Ataxia
- Ataxia Telangiectasia
- ATP Synthase Deficiency: at UMDF
- Attention Deficit Disorder
- Autism
- Alzheimer's Association
- Child Amputee
Home Page
- The ALS
Reporter Comprehensive Resource, including support group listings.
Amyotrophic Lateral Sclerosis Association
ALS appears on Chromosome 2
- Ankylosing
Spondylitis Center
National Ankylosing Spondylitis Society U.K.
Spondylitis Association of America
- National Ataxia
Foundation
Euro-Ataxia
- A-T in Touch
- U.K.
Ataxia Telangiectasia Children's Project
- CHADD Homepage
National Attention Deficit Disorder
- Center for the Study
of Autism
Autism Society of America
National Autistic Society U.K.
Society of the Autistically Handicapped U.K.
- Barth syndrome: at UMDF
- Batten Disease Support & Research Association
- Biliary Atresia & Liver Transplant Network Inc.
- Branchio-Oto-Renal (BOR) Syndrome
- Cancer
- National Information / Support Organizations
- Cancer Information Sites / Lists of WWW Links
- Carbohydrate Deficient Glycoprotien syndrome (CDG)
- United Cerebral Palsy Associations
- Charcot-Marie-Tooth (CMT)
- CHARGE Syndrome Foundation
- Chromosome Abnormalities
- Chronic Fatigue Syndrome at CIFDS Association of America
- Chronic Progressive External Opthalmoplegia (CPEO): at UMDF
- Wide Smiles: For Individuals with Cleft Lip and Palate
- Cornelia de Lange Syndrome Foundation, INC.
- Craniofacial Disorders
- Cri du Chat Syndrome
- Cystic Fibrosis
- Cytochrome C Oxidase (COX) Deficiency: at UMDF
- National Cancer
Institute
American Cancer Society
National Childhood Cancer
Foundation
Candlelighters
Childhood Cancer Foundation
Y-ME: National Organization
for Breast Cancer Information and Support
National Alliance of
Breast Cancer Organizations
- CanSearch:
A guide to cancer resources on the Internet, courtesy of the National Coalition
for Cancer Survivorship.
OncoLink at the University of Pennsylvania is an excellent comprehensive cancer resource.
University of Michigan Comprehensive Cancer Center An excellent comprehensive cancer resource.
CancerNet Web Info Server
Texas Cancer Data Center.
Yahoo! Cancer Index: If you can't find what you are looking for at the above sites, try this index.
- Carbohydrate
Deficient Glycoprotien syndrome Parent Forum
Carbohydrate Deficient Glycoprotien syndrome Society
Carbohydrate Deficient Glycoprotien syndrome Family Network Inc.
- CMTnet
CMT International
- Chromosome
Deletion Outreach
- Includes abnormalities involving inversions, duplications, rings, duplications,
and translocations
- Wolf-Hirschorn
Syndrome: 4p- Parent Network Homepage
- Cri du Chat
Syndrome Support Group (Culcheth, England)
- The
Fragile Website
11q Research and Resource Group
- Support Organization for Trisomy
18, 13 and Related Disorders (SOFT)
Links to Chromosome 16
Center for Human Genome Studies - goals include high quality DNA sequencing and assembly of complete high-resolution maps of chromosome 16 and regions of chromosome 5.Chromosome 17
Los Alamos National Laboratory - Center for Human Genome Studies - goals include high quality DNA sequencing and assembly of complete high-resolution maps of chromosome 16 and regions of chromosome 5.
- Smith-Magenis
Syndrome: PRISMS
- Chromosome
18 Registry & Research Society
Support Organization for Trisomy 18, 13 and Related Disorders (SOFT)
- Klinefelter
Syndrome & Associates
Turner's Syndrome Society of the United States
Turner's Syndrome Society, Texas
- Children's
Craniofacial Association
AboutFace
- Cri Du Chat
Syndrome Support Group - U.K.
5p- Society 'Cri du Chat syndrome' (opening date on April 1, 1997)
- Cystic Fibrosis-WWW
Online Online archive of CF information. A must visit site.Cystic
Fibrosis Foundation
Canadian Cystic Fibrosis Foundation
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