R

• Retinitis Pigmentosa at the Foundation Fighting Blindness
• IRSA (International Rett Syndrome Association)
• Riley-Day Syndrome

aka Familial Dysautonomia
• Riley-Day Syndrome

• Sanfilippo syndrome At the CDGS Family Network
• Scleroderma
Scleroderma Research Foundation
United Scleroderma Foundation
• Septo Optic Dysplasia 'Focus' Support Group
• Short Stature: Little People of America
• Shwachman Syndrome Support Group
• Shwachman Diamond Syndrome
• Sjogren's Syndrome Foundation Inc.
• Greenberg Center for Skeletal Dysplasias
• Smith-Lemli-Opitz Syndrome Advocacy & Exchange
• Smith-Magenis Syndrome: PRISMS
• Sotos Syndrome Support Association
• Families of Spinal Muscular Atrophy Home Page
• Spina Bifida
Lipomyelomeningocele Family Support Network
Spina Bifida Resource PageAssociation for Spina Bifida and Hydrocephalus
• Still birth- see Miscarriage
• Succinate Dehydrogenase Deficiency: at UMDF

• Late Onset Tay-Sachs Foundation
• National Tourette Syndrome Association, Inc.
• Treacher Collins Syndrome
Treacher Collins Family Support Group U.K.
Treacher Collins Foundation
The Treacher Collins Network
• Support Organization for Trisomy 18, 13 and Related Disorders (SOFT)
• The National Tuberous Sclerosis Association
• Turner Syndrome
Turner's Syndrome Society of the United States Turner's Syndrome Society, Texas

• Ubiquinone-Cytochrome C Oxidoreductase Deficiency: at UMDF
• National Urea Cycle Disorders Foundation
• Usher syndrome at the Foundation Fighting Blindness

• Velo-Cardio-Facial Syndrome
Velo-Cardio-Facial Syndrome Educational Foundation
22q and you newsletter: Published by the Children's Hospital of Philadelphia
• National Vitiligo Foundation
• Von Hippel Lindau Syndrome, (VHL)
VHL Family Alliance
Von Hippel Lindau Syndrome Homepage: at the University of Kansas

• Wegener's Granulomatosis Support Group, Inc.
• Williams Syndrome
Williams Syndrome - Canadian Association Williams Syndrome U.S. Association
Comprehensive Williams Syndrome Home Page: by the Williams Syndrome Foundation
• Wilson's Disease Association
• Wolf-Hirschorn Syndrome: 4p- Parent Network Homepage

• X-linked Myotubular Myopathy Resource Group
• Xanthinuria Deficiency: Purine Research Society
• Xeroderma Pigmentosum Society Inc.
• If any of these links change, send email to [email protected] with the new link.



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