The Many Faces of
The Many Faces of
Creutzfeldt-Jakob
Disease (CJD)
Creutzfeldt-Jakob Disease (CJD) is a horrendous infectious rapidly
progressive fatal brain-deteriorating disease for which there is no treatment
or cure. One strain, nvCJD, is linked to bovine spongiform encephalopathy
(i.e. Mad Cow Disease) in Great Britain. CJD often escapes detection. A
common misdiagnosis is Alzheimer's Disease.
The personal stories on this website put a face on CJD. The stories are
written by teenagers and adults. Most of the stories tell of people who have
died of CJD or currently have CJD. These stories describe the symptoms and
progression of the disease as well as the problems in getting it correctly
diagnosed.
Other stories tell what it is like to receive a notice that the blood products
your child received as a baby have been recalled from the market due to the
theoretical risk of Creutzfeldt-Jakob Disease. While the risk may be theoretical,
the anxiety that results from receiving such a notice is very real and changes
one's life forever.
Another story that deals with the theoretical risk of blood transmission of
CJD is by a USAF Retired serviceman and former blood donor.
Everyone's experience is different so the stories are all different. If you
have been personally affected by CJD please consider contributing your story
to this website. In the future we also hope to include stories by people who
have received medical treatments, such as cadaver-derived growth hormones
for short stature, that put them at risk for CJD.
CJD FACT SHEET
Get the facts on the disease - Click on the dot
LATEST CJD NEWS
Coming soon !!
The great humanitarian Albert Schweitzer said, "The
purpose of life is to serve and show compassion and
the will to help others."
Family & CJD Victims Stories:
Please share your loved ones information. We now are building a database, the purpose of which is to learn how many victims of CJD in the US. Is it truly one in a million? We believe it is more than one in a million. And the age of the victim now appears to be much younger.
Please join us in our quest for the truth.
Click on the mask button below to submit the information for inclusion in
this database:
To view, click on dots:
CJD WATCH DATABASE
Click on this mask to go to CJD Watch
CJD Watch is a sister site to "The Many Faces of CJD"
CJD Watch Main Project. To document the areas where a victim of CJD passed away, where they may have contracted it or lived when the disease was diagnosed is a tremendous project. We need help to make the project effective. Please help us by sending your family victim, friend, acquaintances Victims Profile for inclusion in the CJD Watch - Public Awareness Project.
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Visitors since September 8, 1998
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Much appreciation to Barbara for her years of work on these pages. And to Ray Clark, for his many hours of helping the reconstruction of them. Also to all that submit their stories to help others that will walk the paths we have walked. Blessings and comfort to all that visit here. Carmie, Webmaster 
Graphics By the Best on the Net: Bimsan's Web Graphics Copyright � 1997 |
